Bob DeWaay had another consult with the Hematologist at the U of M today and he has suggested two new drugs for Bob. The first one is Mycophenolate mofetil or MMF (CellCept) and it is to treat his red cell aplasia caused by Churg Strauss Syndrome; a rare auto immune disease. This will be the fourth treatment to try and solve this.
The 2nd drug is a new drug recently approved by the FDA to strip the extra iron out of his body that is accumulating from all of the transfusions. It is called Deferiprone or (Ferriprox). It is not supposed to be so hard on his kidneys. This is the only other drug approved in the USA so please pray the insurance company will approve it, and that it will be effective with few side affects.
On a positive note his last treatment was Atgam. It made him quite sick and weak and did not help his red cell aplasia, but it did improve his vasculitis caused by the Churg Strauss Syndrome so we are thankful for that.
We appreciate your prayers and all the encouragement you have given us. We are so thankful for all the things our family and brothers and sisters in Christ have done to help us. We know we are in the safest place we can be - the sovereign hands of our Lord.
Thank you for your continued support and prayer for my family.